Study title

A study to improve the quality of out of hours palliative care services for end of life patients

Principal / Lead Investigator

Dr Huw Williams, Cardiff University

Co-Investigators
Type of study

Mixed methods (scoping review of literature and quality improvement methods)

Study sponsor

Aneurin Bevan University Health Board

Summary

The study will form a Palliative Care Quality Improvement (PCQI) team to improve OOH care for palliative patients at Aneurin Bevan University Health Board (ABUHB).  The Fellow will embedded within the QI team (a “researcher in residence”) to: undertake an analysis of remaining reports to characterise priority areas for improvement; review the literature to identify existing interventions / initiatives for each priority; and take these finding to OOH stakeholder to discuss the feasibility of each option (and encourage sharing of new change ideas).  The PCQI team will utilise these findings to inform and lead the project.  The Fellow will observe and interview the QI team /OOH staff to determine how changes work in different contexts, and will regularly feedback learning to the team.

Public / patient involvement

Mr Anthony Chuter, an experienced patient advocate and has experience of working with the PISA group on our existing work and outputs.  He was involved in the development of the fellowship application and will be a key partner during the project. The Aneurin Bevan Continuous improvement team is involved in identifying patient partners who will be involved in the stakeholder events.

A stakeholder event is being convened in the afternoon of 5th October 2017, Christchurch Centre, Malpas Rd, Newport. The groups will involve a mix of participants from different professional backgrounds as well as patients and relatives to gain as many viewpoints as possible. If you are interested in attending, please contact Dr Huw Williams at williamshm11@cardiff.ac.uk

How could this research potentially benefit patients?

It is acknowledged that patients receiving care at the end of their lives can receive less than ideal care from general practice. Unfortunately, research is lacking around how GP-led services can be redesigned to be safer for these patients.  The expected improvements based on emerging lessons from analysis so far – will be more timely and effective symptom management, better access to OOH services for patients receiving end of life care, better awareness of patient’s preferences and treatment goals amongst OOH providers.

Does the study involve a methodological innovation?

The use of insights from national level patient safety incident reports to inform and facilitate local level improvement initiatives is a new one – especially in primary care. 

Funder

RCGP Scientific Foundation Board             

Total grant value

£ 39,900

Grant income to Wales

£ 39,900

Start date

01/01/2017

End date

20/12/2018

Further information

News: Out-of-hours study awarded RCGP Marie Curie Palliative Care Research Fellowship, RCGP News, 13 December 2016.

Outputs generated (Reports / Publications / Impact)

The scoping review of the literature will be prepared for peer reviewed publication in a palliative care, primary care or patient safety journal.  The Stakeholder event learning will be submitted for oral presentation at international patient safety conference.

Learning and evaluation of all phases of the project will feed into a “How to guide for improving OOH Palliative Care”.

The experiences of the improvement project, combined with insights from incident reports and scoping review will act as a guide for others to begin to develop their own Quality Improvement agenda within their own area. 

Conference oral abstract: Williams H, Nobel S, Kenkre J, Edwards A, Hibbert P, Donaldson L, Carson-Stevens A.  Sub-optimal care for patients in the out of hours primary care setting at the end of life: a mixed methods study. Supportive and Palliative Care 7(3):A347-A348 · September 2017. DOI: 10.1136/bmjspcare-2017-001407.2